The Coronavirus pandemic has required that we all stay at home a lot. And it is hard to participate in a group activity such as an exercise class in your own home. But thanks to the internet, the world can seem a lot smaller than it actually is, and that closeness can make exercising at home a real option. There are a number of Parkinson’s-specific exercise instructors who charge for their online services (as is appropriate if they are not separately funded). But since people with PD have limited funds, I am going to mention only those that are free.
Caregiver's Corner | Cognitive Impairment in PD: A Plan for Caregivers
Dr. Johnna Devoto helps caregivers and PWPs find strategies for maintaining quality of life and live well with Parkinson’s disease. In this talk from our PD Edu series, Dr. Devoto helps caregivers create a plan for moving forward based on cognitive changes and mood disorders that may come into play down the road as you navigate a life with PD.
Support Groups
Support groups are a safe space where individuals can come together to share their stories and experiences with others. Support groups are focused around a common concern; in this case Parkinson's Disease. Support group content is driven by the folks who are attending the group with the assistance of a group facilitator.
My Parkinson Story | Steve Gifford
Diagnosed at age 36, I am now 51 and have been living with Parkinson’s for 15 years. Fighting back is not easy. Parkinson’s is an unrelenting wind that blows from all directions. But as we resist, we are strengthened, and we work continually to retain what we can for as long as we are able and encourage others to do the same along the way.
Rock Steady Boxing Recommended by PDF
Last month we profiled the PWR! Moves Program as one of the two exercise programs now accredited by the Parkinson’s Foundation that is offered in the greater Cincinnati area. The second of those two is known around the world and is very popular – Rock Steady Boxing. As included in their mission statement, their goal is “to improve the quality of life for people with Parkinson’s disease through a non-contact, boxing-based fitness curriculum.”
Book Review | A Prescription for Action Ending Parkinson’s Disease
My Parkinson Story | Ken Hintze
In 2018, I was experiencing memory issues; I couldn’t remember what happened the day before or memories from a few years back. For 10 years I had experienced REM sleep disorders. My sleep doctor recommended me to Dr Rhonna Shatz, a UC neurologist. She diagnosed me with a form of Parkinson’s Disease in 2019.
Upcoming Opportunities to Learn More about Speech & PD
PWR Moves Recommended by PDF
So you have heard about the Parkinson Foundation recommendations for exercise. You know you need to do Parkinson-specific exercise. But how do you know which exercise class offers a PD-specific workout? Now the Parkinson Foundation (a national organization whose mission is to improve care for people with Parkinson’s and to advance research toward a cure) has started its program to accredit programs that train exercise instructors in PD-specific methods. Of the first three programs that achieved this accreditation, two are available in our area.
Words: Reaching Equanimity
Steady Strides 2022
Well it is that time of year again! Parkinson Support & Wellness is excited to announce our annual 5k fundraiser is on October 1st at the Lindner Family Tennis Center. The race start time is at 10am this year, versus the usual 9am. We made this decision to push back the race start time to allow our racers with Parkinson Disease to have some extra time in the morning to let their bodies warm up!
Sleep and Parkinson's
Sleep is essential for all people. The recommended amount of sleep for adults is eight hours each night. A pattern of good sleep can improve psychological, emotional and cognitive function. It can also strengthen the immune system and regulate appetite and blood pressure and more. It is the ultimate system reset. But disturbances in healthy sleep patterns are one of the most common non-motor symptoms of Parkinson’s disease. So what can you do about your sleep difficulties?
Spring Forum 2022
Educational Opportunities
PSW Partners with Miami University
Mark Lacker, one of PSW’s board members, teaches a class at Miami University called ESP 321: Startup Development Using SCRUM . His class for the past semester has been working on projects for PSW that have actionable deliverables that we will be rolling out in the next few months. We can’t thank them enough for all their hard work!
What do you love?
I've been avidly reading Louise Penny books- her Inspector Gamache Series. They are beautifully written with rich character voices that struggle with the big questions in life. Yesterday I came upon this and thought about my life and how that way of holding on to the good things could help me: “What do you love Isabelle?”
Preparing for a Hospital Stay
New Exercise Guidelines for PWPs
Three Books by a Famous Person with Parkinson’s
We may have been diagnosed with Parkinson’s disease, but in some ways we are lucky. The Parkinson’s community is lucky that a quite young, quite handsome, and quite well-known actor was also diagnosed with the same disorder and that he has been willing to lend his name, his fame, and his money to the cause of research for Parkinson’s disease.