Being the carepartner for a Person with Parkinson’s requires tenacity, grace, and support. But you don’t have to do it alone. There are many resources available for carepartners, including support groups and online resources.
Carepartner Support groups
Care Notebooks
The life of a caregiver is very full and I am always searching for ways to help make it easier and more efficient. One way to do this is to create a “Care Notebook.” It is a “one-stop resource” for physician appointments, caregiver information, and something tangible to grab if you are heading to the emergency room or hospital for a procedure. It could include information such as: medication history (past and present), recent tests performed, allergies, family contact information, physician business cards, insurance cards, living will, questions for physician visits, calendar for appointments, etc., etc. It can be as stream-lined as you desire or as full as you wish. It would serve as a central place to organize all of your health care information and would make it easier to share the information with your health care team.
Maureen Gartner, NPC
CaregiverHelp.com
Elaine Sanchez is one of the co-founders of CaregiverHelp.com. This website is a video-based caregiver support program. Elaine started this journey from her own experiences with caring for family elders. She has "a passion for helping others cope with the emotional stress of caring for family elders." Elaine has developed many online continuing education courses together with her husband, Dr. Alex Sanchez. Also she has been approved by Washington State DSHS to deliver training to long-term care workers in the State of Washington. Elaine has on numerous occasions been a keynote speaker on the subject of healthcare and caregiving across the US. She is also the author of "Letters from Madelyn, Chronicles of Caregiver".