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Parkinson Support & Wellness’s Harvey Chyette Spring Educational Forum returns to Manor House on April 20, 2024.
Hosted on Sat April 27, 2024 6:00 pm (Doors: 5:00 pm ) at The Southgate House Revival - Sanctuary.
Holidays can be full of joy and excitement, but also tricky to navigate if you have any sort of chronic illness. The keys to enjoying the holidays can be sorted into a few important categories: maintain routines, be alert to safety issues, ask for and accept the help you need, and keep it simple.
Blog written by: Eric Minghella, emm@ssd-help.org
Parkinson’s disease typically affects older people, but if you haven’t yet reached the age where you want to retire and you’ve been diagnosed with Parkinson’s disease you can apply for Social Security disability benefits. If the symptoms of Parkinson’s are so bad that you can’t work any longer and you expect that you won’t be able to work for at least a year but you have work credits you are eligible for Social Security disability benefits.
‘Steady Strides 2023 presented by Supernus: A Remarkable Journey of Hope and Community’ A note from our Executive Director, Chris Gaffney
Early registration price ends on Thursday, August 31 at 11:59 PM for our 15th annual Steady Strides 5K walk/race! Register today for $35! After that registration will be $40!
We had a blast at our fundraising night at the Florence Y’alls on July 29! It was Christmas in July that evening and you could feel the holiday spirit in the air!
Parkinson's Support & Wellness hosted a Support Group Facilitator Training program in early July for folks who may be interested in starting a new support group in their geographic area.
Recent scientific research has highlighted a potential connection between Parkinson’s disease and exposure to contaminants found in the water supply at Camp Lejeune, a U.S. Marine Corps base in North Carolina.
The human need for companionship and connection to others is as basic as the need for food and water. Feeling lonely is bad for not only your mental health, but for your physical health. If you are living with PD, you are even more at risk for feeling lonely and disconnected, but here are a few ways to combat that.
There is something about aging that involves fear of the unknown. There is loss and surrender, which causes me to fear. I am the youngest of six siblings, my oldest brother will be 85 this year. He is in good health except for chronic back issues and pain. The rest of my siblings are 83, 78, 77, and 76. I look at the next 10 years as a series of potential losses for me.
Parkinson Support and Wellness is excited to announce our 15th annual Steady Strides 5k Walk/Race on September 30.
Getting a diagnosis like PD can bring about a desire to live NOW. A feeling that life should be enjoyed and embraced while we are able to do so. The time to evaluate a personal “bucket list” is NOW. Everyone has a personal and often quirky bucket list but many, many lists include travel.
Continuing our look at exercise providers in the Greater Cincinnati area, we turn now to the Neurofit Gym, a non-profit organization in Northern Cincinnati specializing in helping those with neurological disorders, including Parkinson's Disease. Through exercise, education, community, and connection, their mission is to help these individuals live healthier and more independent lives.
Recently the Parkinson’s community has been buzzing with news of a research breakthrough. It was announced in the Michael J. Fox Foundation newsletter of Spring/Summer 2023 that a new tool (called the alpha-synuclein seeding amplification assay) has been discovered that “can detect pathology in spinal fluid not only of people diagnosed with Parkinson’s, but also . . . [of those] at a high risk for developing it.”
Parkinson's disease has been a part of my life and family for as long as I can remember; my grandpa was diagnosed with the condition when I was little. From my earliest recollections of him, Parkinson's was an ever-present reality. I remember my dad telling me stories of my grandpa before his diagnosis, and those two people seemed so different. I've heard he was active, charismatic, and had a bit of a temper. I didn't know that guy.
An important non-pharmacological treatment for Parkinson’s disease is massage therapy. Many people think of massage as simply an indulgence, but massage therapy does more than just relax you; it can be very helpful for several of the difficult symptoms of Parkinson’s disease.
Our first back in-person Spring Educational Forum happened this past month on April 1. We were so excited to see so many people attend!
For those who do not know me, I am the Assistant Director of Parkinson Support and Wellness. The short version of my Parkinson story is that in early 2019, my dad was diagnosed with PD. I started to volunteer for the Steady Strides committee in 2020 and was then hired when they were looking for a third employee. Really though, it is a longer story than that.
Join us for our next PD Edu on Saturday, May 20 from 11am to Noon. "Fall Prevention with Exercise" will be presented virtually by Lisa Coors.
Now, the story turns to you. Your travel experience will vary according to what type of traveling you are doing: flying to a single destination to visit family, touring on an itinerary you have planned, embarking on a group tour. And it will depend on your own particular Parkinson’s issues. Your goal is to become aware of common travel challenges and consider how best to prepare for them.
Nearly a year ago I wrote an article that appeared on this blog on the topic of sleep and PD. The basics are still true – the fact that sleep is essential to reset your system, that eight hours is the recommended amount of sleep for all adults, and that disturbances in healthy sleep patterns are one of the most common non-motor symptoms of Parkinson’s disease.
Join us Saturday, April 1 for The Harvey Chyette 2023 Spring Educational Forum. Parkinson Support and Wellness is excited to bring back our Spring Forum as a hybrid event this year.
On April 1 we are hosting our next The Harvey Chyette 2023 Spring Educational Forum from 9:30-2pm. We are in need of volunteers to help us make sure the event runs smoothly. We hope you might consider helping us!
Another in our review of exercise opportunities in the Cincinnati area is Alpha Neuro Fitness (ANF) located at 800 E. Ross Ave. in St. Bernard (just off the Norwood Lateral). Owner and trainer Adam Magee began his work with PD patients in 2012 when, as an undergraduate majoring in Exercise Science at NKU, he worked as an intern with a research study at UC involving exercise for Parkinson’s and multitasking. He was so intrigued and wanted to do all he could to help the patients. Ten years later, he now has a Masters in Healthcare Administration and his own gym where he works with patients one-on-one.
In getting ready for my winter trip to Iceland, where temperatures range from 28-36 degrees Fahrenheit, I paid careful attention to the packing list provided by the tour company running my trip. As instructed, I brought plenty of layers of clothing. I could barely squeeze all layers on at once and I looked like a sausage bulging at the seams when fully suited up. I soon discovered that I couldn’t manage all those layers. Like many others with Parkinson’s, I have limited flexibility in my torso, shoulders, and arms.
