"Shocked". "Confused". "Heartbroken". My family and I went through all the standard emotions I suppose. I look back to the person I was in 2009. Physically, I want to be that guy again. What I thought was such a burden THEN is barely a challenge compared to what I'm facing just 12 years later. Mentally and emotionally... No, I don’t want to be that guy. I've come too far from the day I heard the word “Parkinson's.”
Steady Strides Registration is Open!
Living Inside My Body
6 Places to Get Started Walking with PD
By this time, you have most likely heard how important exercise is for people living with Parkinson’s disease. Very important. In fact, it’s essential. Perhaps you have not been an exercise fanatic most of your life. Spending your weekends competing in athletic events or running marathons is just not your idea of a good time. And now your doctor tells you that you MUST exercise. Where to begin? I suggest you begin with walking.
My Parkinson Story | Carrie King
My entire life I was daddy’s little girl. My dad was the bravest, funniest, smartest, most hardworking, cleverest, handiest man I ever knew. He taught me so many things. I remember the day he and mom came home from the doctor and told my brother and I about his diagnosis. I was shocked and scared. I had no idea what to expect, but it sounded bad.
Sunflower Revolution
Parkinson's as a Shared Language
Caregiver's Corner | Kathryn McGrew (part 3)
No one fully understands what your caregiving situation is like for you. No one. Not even other Parkinson’s caregivers; and ironically but maybe especially, not even the person you are caring for. Just as no two Parkinson’s “cases” are alike, no two caregivers, caregiving relationships, or caregiving situations are alike.
The Right Stuff
The Right Time to Add Support at Home: Supporting People with Parkinson’s Disease and Families
One of the most common questions from family members of people diagnosed with Parkinson’s disease pertains to when and how to get help at home for caregiving support of a loved one. Often people diagnosed with Parkinson’s disease and their loved ones struggle with knowing when to add support at home for everyone, and there are many complex and unique concerns for each family regarding their support system and life at home. There is not a “one size fits all” model for support at home, but there are some general benefits to adding support sooner than later. If you or your loved one are starting to wonder when to add support, it may be time to begin to plan to add support.
My Parkinson Story | Chris Gaffney
Almost five years ago I retired from a 35-year career in telecommunication sales and began in earnest to design the rest of my life. I had always planned to include a component of “giving back” to the community and started a search for a not-for-profit organization that could benefit from my experience in business.
Keeping it Simple and Safe with Exercise
In the Navy we had an acronym that was thrown around pretty commonly; K.I.S.S. (Keep It Simple Stupid). Now let me start by saying I do not say this to my clientele but, I do use the same basis for my training and advice outside of my facility. “Keep it simple, Keep it safe” are words that come out of my mouth MANY times a day.
My Parkinson Story | Dave Ebner
Five years ago, when I was diagnosed with PD, I wrote an article for the PSW newsletter. The tile was “My New Reality”. I expected the diagnosis, as our son had been dealing with Parkinson’s for about 15 years, and as a volunteer with the Parkinson Support & Wellness Organization, I had many opportunities to learn about PD. I knew too much about the symptoms I was experiencing. At least I did not have to deal with denial.
Parkinson's Foundation Issues Exercise Recommendations
My Parkinson Story | Shane Eberhard
Preventing and Dealing with Falls
My Parkinson Story | Rick Iles
In September, 2013, I was at a church festival and Rob, a friend of mine, was watching me walk across a field. I was really limping badly, and he realized he had never really noticed how I walked. For the first time, He Saw Me Walking, and he decided to ask me why I had so much trouble. I told him about dystonia and he told me that he was aware of a device that might help me walk normally.
Caregiver's Corner | Kathryn McGrew (part 2)
No one fully understands what your caregiving situation is like for you. No one. Not even other Parkinson’s caregivers; and ironically but maybe especially, not even the person you are caring for. Just as no two Parkinson’s “cases” are alike, no two caregivers, caregiving relationships, or caregiving situations are alike.
